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COVID-19 and patient-reported outcomes

New Content Item

The Editors of the Journal of Patient-Reported Outcomes (JPRO) are pleased to present this collection on COVID-19 and patient-reported outcomes.

All articles in this collection underwent the journal’s full standard peer review process. 



  1. The onset of COVID-19 has caused an international upheaval of traditional in-person approaches to care delivery. Rapid system-level transitions to virtual care provision restrict the ability of healthcare prof...

    Authors: Bishnu Bajgain, Sarah Rabi, Sadia Ahmed, Veronika Kiryanova, Paul Fairie and Maria J. Santana
    Citation: Journal of Patient-Reported Outcomes 2023 7:126
    Content type: Review Published on:

  2. PROs are valuable tools in clinical care to capture patients’ perspectives of their health, symptoms and quality of life. However the COVID-19 pandemic has had profound impacts on all aspects of life, in parti...

    Authors: Patricia Holch, Grace Turner, Anju D Keetharuth, E Gibbons, Kim Cocks and Kate L Absolom
    Citation: Journal of Patient-Reported Outcomes 2023 7:121
    Content type: Research Published on:

  3. The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was wor...

    Authors: Carla Vlooswijk, Silvie H. M. Janssen, Lonneke V. van de Poll-Franse, Rhodé Bijlsma, Suzanne E. J. Kaal, J. Martijn Kerst, Jacqueline M. Tromp, Monique E. M. M. Bos, Roy I. Lalisang, Janine Nuver, Mathilde C. M. Kouwenhoven, Winette T. A. van der Graaf and Olga Husson
    Citation: Journal of Patient-Reported Outcomes 2023 7:93
    Content type: Short report Published on:

  4. The COMET-ICE trial demonstrated that sotrovimab clinically and statistically significantly reduces the risk of all-cause > 24-h hospitalization or death due to any cause among patients with COVID-19 at high r...

    Authors: Sacha Satram, Parima Ghafoori, Carolina M. Reyes, Tom J. H. Keeley, Helen J. Birch, Dimitra Brintziki, Melissa Aldinger, Elizabeth Alexander, Amanda Lopuski, Elias H. Sarkis, Anil Gupta, Adrienne E. Shapiro and John H. Powers III
    Citation: Journal of Patient-Reported Outcomes 2023 7:92
    Content type: Research Published on:

  6. Longitudinal estimates of long COVID burden during Omicron remain limited. This study characterized long-term impacts of COVID-19 and booster vaccination on symptoms, Health-Related Quality of Life (HRQoL), an...

    Authors: Manuela Di Fusco, Xiaowu Sun, Mary M. Moran, Henriette Coetzer, Joann M. Zamparo, Mary B. Alvarez, Laura Puzniak, Ying P. Tabak and Joseph C. Cappelleri
    Citation: Journal of Patient-Reported Outcomes 2023 7:77
    Content type: Research Published on:

  7. Cancer survivors are at greater risk for poor health outcomes due to COVID-19. However, the pandemic's impact on patients’ health-related quality of life (HRQoL) is not well known. This study hypothesized that...

    Authors: Laura M. Perry, John D. Peipert, Sheetal M. Kircher, Jackelyn Cantoral, Frank J. Penedo and Sofia F. Garcia
    Citation: Journal of Patient-Reported Outcomes 2023 7:71
    Content type: Research Published on:

  8. This study characterized depression trajectories during the COVID pandemic and investigated how appraisal and changes in appraisal over time related to these depression trajectories.

    Authors: Carolyn E. Schwartz, Katrina Borowiec and Bruce D. Rapkin
    Citation: Journal of Patient-Reported Outcomes 2023 7:67
    Content type: Research Published on:

  9. With its health risks and extensive disruption to everyday life, the SARS-CoV-2 (COVID-19) pandemic has affected the lives of billions of people. People with chronic conditions are particularly susceptible to ...

    Authors: Caroline Trillingsgaard Mejdahl, Pernille Bjørnholt Nielsen, Lise Arnth Nielsen, Astrid Fyrstenborg Christensen and Berit Kjærside Nielsen
    Citation: Journal of Patient-Reported Outcomes 2023 7:62
    Content type: Research Published on:

  10. Symptom expression in SARS-CoV-2 infection (COVID-19) may affect patients already symptomatic with cancer. Patient-reported outcomes (PROs) can describe symptom burden during the acute and postacute stages of ...

    Authors: Loretta A. Williams, Meagan S. Whisenant, Tito R. Mendoza, Angela E. Peek, Donna Malveaux, Donna K. Griffin, Darcy A. Ponce, Bruno Palma Granwehr, Ajay Sheshadri, Katherine A. Hutcheson, Sara M. Ali, Susan K. Peterson, John V. Heymach, Charles S. Cleeland and Ishwaria M. Subbiah
    Citation: Journal of Patient-Reported Outcomes 2023 7:48
    Content type: Original Report Published on:

  11. COVID-19 put older individuals at high risk for morbidity and mortality, isolation, reduced coping, and lower satisfaction with life. Many older adults experienced social isolation, fear, and anxiety. We hypot...

    Authors: Nasreen Lalani, Xu Dongjuan, Yun Cai and Greg W. Arling
    Citation: Journal of Patient-Reported Outcomes 2023 7:46
    Content type: Research Published on:

  12. The novel Coronavirus (COVID-19) has continued to present a significant burden to global public health efforts. The purpose of this study was to estimate the health-related quality of life, disability, and hea...

    Authors: Casey R. Tak
    Citation: Journal of Patient-Reported Outcomes 2023 7:31
    Content type: Research Published on:

  13. Long Covid is an unknown illness which has been shown to affect sufferers regardless of mild initial COVID-19 or age. There is still a lot unknown about long COVID illness. There has been a call to understand ...

    Authors: Lilian Skilbeck, Christopher Spanton and Michael Paton
    Citation: Journal of Patient-Reported Outcomes 2023 7:30
    Content type: Research Published on:

  14. The COVID-19 pandemic presents a unique, amplified threat to those living with a cancer diagnosis, but personal factors may play a role in how this affects well-being. This cross-sectional study (1) describes ...

    Authors: Erica E. Fortune, Alexandra K. Zaleta and Victoria G. Morris
    Citation: Journal of Patient-Reported Outcomes 2023 7:29
    Content type: Research Published on:

  15. Patient-reported outcome measures are needed to assess the impact of treatments for COVID-19 on symptoms. The ACTIV-2 COVID-19 Symptom Diary (ACSD) is being used in the ongoing Accelerating COVID-19 Therapeuti...

    Authors: Louis S. Matza, Katie D. Stewart, April N. Naegeli, Kayla M. Mills, Karin S. Coyne, Kara W. Chew, Michael D. Hughes and Davey M. Smith
    Citation: Journal of Patient-Reported Outcomes 2023 7:8
    Content type: Research Published on:

  16. Although there is extensive literature on the clinical benefits of COVID-19 vaccination, data on humanistic effects are limited. This study evaluated the impact of SARS-CoV-2 infection on symptoms, Health-Rela...

    Authors: Manuela Di Fusco, Xiaowu Sun, Mary M. Moran, Henriette Coetzer, Joann M. Zamparo, Laura Puzniak, Mary B. Alvarez, Ying P. Tabak and Joseph C. Cappelleri
    Citation: Journal of Patient-Reported Outcomes 2022 6:123
    Content type: Research Published on:

  17. The impact of the COVID-19 pandemic on psychological well-being will likely be long-lasting. Efforts directed towards monitoring the onset and progression of distress and mental health disorders are needed to ...

    Authors: Manraj N. Kaur, Elena Tsangaris, Tanujit Dey, Shelby Deibert, Janina Kueper, Maria Edelen and Andrea L. Pusic
    Citation: Journal of Patient-Reported Outcomes 2022 6:116
    Content type: Research Published on:

  18. The impact of the coronavirus disease 2019 (COVID) is worse among those with fewer financial resources, in jobs not amenable to remote work, and in denser living conditions. People of color are more likely to ...

    Authors: Carolyn E. Schwartz, Katrina Borowiec, Elijah Biletch and Bruce D. Rapkin
    Citation: Journal of Patient-Reported Outcomes 2022 6:113
    Content type: Research Published on:

  19. The COVID-19 pandemic has impacted various aspects of people’s life and wellbeing around the world. This study aimed to examine the impact of the COVID-19 pandemic on health-related quality of life (HRQL), mea...

    Authors: Jiabi Wen, Fatima Al Sayah, Roland Simon, Markus Lahtinen, Jeffrey A. Johnson and Arto Ohinmaa
    Citation: Journal of Patient-Reported Outcomes 2022 6:109
    Content type: Research Published on:

  20. Alcohol consumption has changed during the COVID-19 pandemic yet the impacts on alcohol-related outcomes, and specifically health-related quality of life, are not completely known. Our objective was to assess ...

    Authors: Eve Wittenberg, Collin Labutte, Benjamin Thornburg, Abraham Gebreselassie, Carolina Barbosa and Jeremy W. Bray
    Citation: Journal of Patient-Reported Outcomes 2022 6:106
    Content type: Research Published on:

  21. As the COVID-19 pandemic evolves, more information is needed on its long-term impacts on health-related quality of life (HRQoL) and social determinants of health (SDoH). The aim of the study was to assess HRQo...

    Authors: Kathleen R. Case, Chen-Pin Wang, Meredith G. Hosek, Sarah F. Lill, Alexandra B. Howell, Barbara S. Taylor, James Bridges, Daniel J. MacCarthy, Paula Winkler and Joel Tsevat
    Citation: Journal of Patient-Reported Outcomes 2022 6:72
    Content type: Research Published on:

  22. The COVID-19 pandemic has impacted the mental health and well-being of health care workers (HCWs). This study examined mental health outcomes and COVID-related stress impacts among a diverse sample of ambulato...

    Authors: Joshua Biber, Bethany Ranes, Shanieek Lawrence, Vishal Malpani, Trong Tony Trinh, Andrew Cyders, Steven English, Charles L. Staub, Kristen L. McCausland, Mark Kosinski, Nishtha Baranwal, Daniel Berg and Rodica Pop
    Citation: Journal of Patient-Reported Outcomes 2022 6:63
    Content type: Research Published on: